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Wednesday, April 14, 2010

Babies can be saved!!

 This may be a bit long but please read it to the end.  This is a web posting by a Mom who trusted her maternal instincts that something wasn't right with her pregnancy.  Connie, a Star Legacy Foundation Board Member replied and urged her to seek another opinion.  Long story short..... she did and has a healthy baby that no doubt would have been another tragedy.  Kudo's to Connie!  Please keep an eye on the Star Legacy Foundation web page - we're under going a renovation AND we'll soon be unveiling our new awareness and advocacy campaign.  We'll need your help to spread the word!!  Know your baby, count your baby's movements, ask for an ultrasound around 28 weeks to identify potential placental and/or cord issues that may require further monitoring and trust your instincts. 
Blessings,
Shauna

 

Andrews Mel Hi Ladies, I'm really sorry for your lost little angels. I do have something to add however. It isn't just midwives that need the education, but the obs as wel. For the last week i have been having contractions due to an irritable uterus and today i went to see my ob. I told her that on sunday it took me 6hrs to get my baby to move (cold drinks, hot water bottles, sugary drinks and foods). When baby finally moved, it's movements have been weaker than normal. My ob says it is ok, the heartbeat is ok today and not to worry about the kickchart because baby isn't moving enough. I'm stressing out. This pregnancy started as multiples, we only have 1 left. We are 31wks yesterday.

She doesn't want to see me for another 2wks now, when she said she "supposes we should do an ultrasound to find out what is going on.

I just don't know what to do anymore, i cannot take anymore heartbreak.

I think this campaign is great and i hope the medical professionals get the message.

Cheers Mel. ox
February 9 at 10:41pm · Report

Chloe's "Count the Kicks" Campaign Mel... get a second opinion! Demand it in A&E if you have to... sometime these individuals have different ideas, call the NHS Direct if you want to or call a different hospital. Just ask their opinion. But just to be safe.
I just beleive these doctors don't respect how strong a Mothers Intuition is... if your baby was in your arms and not moving much, his or her pulse may well be strong - but there still would be a questionmark over why it's not moving - there is no difference.
I think this campaign should give Mums the confidence to put their foot daown and be Ascertive... demand a second opinion you are entitled, if they argue tell them it states it in the "Patients Charter" I promise you this WILL make them listen to you!

We have rights as patients and very little is known about this until it's too late.

I don't want to turn this campaign into an attack on the NHS but I do think sometimes it is very easy for us to be ignored.

If you're worried then SHOUT!!!

Good luck hon.
xx
February 11 at 1:23pm · Report

Connie Hosker Hi Ladies,
My first granddaughter, Robert Rae, was born still at 36.3 weeks. My daughter in law had all the signs of a baby in distress on various occasions but was always told she was fine. If you feel your baby has slowed down - or - speeded up from the baby's normal pattern, call your midwife or doc and get checked. Do your kick counts religiously!!!

A 28 week scan is a wonderful thing and have your professionals look for the cord - and tell you where it is. Roberta Rae had torsion of the cord - which could have been monitored - if they had scanned her at 28 weeks and followed her along.

I am now supporting The Star Legacy Foundation which is devoted to Stillbirth Education and Research. Please check out the work of Dr. Jason Collins of The Pregnancy Institute in New Roads, Louisiana - just outside of Baton Rouge - who has devoted his career to umbilical cord accidents which account for 30% of the 25,000 + stillbirths in the USA.

My daughter in law is now 20 weeks pregnant and she will be seeing Dr. Collins @ 28 weeks for a scan to check the umbilical cord and placenta location. She will then to be monitored from where she lives in South Carolina every evening by Dr. Collins. If the baby's movements speed up or slow down she will go to her own doc in SC to be checked.

Listen to your "GUT" instincts.
Big Love Hugs & Blessings,
Connie
February 17 at 3:09pm · Delete Post

Chloe's "Count the Kicks" Campaign Thanks Connie!

x
March 15 at 3:18pm · Report

Emma Robinson I found it harder with a toddler to count the kicks on my 2nd pregnancy, but I was still aware of movements etc, to the point that just like with my first daughter I was in and out of hospital apologising for wasting their time because as soon as I was hooked up to the monitor she would kick. I am glad I went when I did with my 2nd daughter though as even though overdue like my first, they wanted to induce me earlier that the protocol due to reduced movement and they weren't happy with the trace. I wasn't happy to be induced as I had a lovely quick first birth, but knew it was the best thing for my baby. Any way while in hospital and waiting 12 hours for a bed to be induced, I went into spontaneous labour, it was very very quick so we dont know if that put baby in shock or if the fact her movements/trace weren't very good, but she was born flat, took her out to be resusistated then she had an agpar of 3 and eventually upto 9, so I am glad I went to the hospital when I did or things could have been different.

So please go and get checked out if you aren't happy, I apologised on both pregnancies to the midwives and they aid thats what they are there for xx
Yesterday at 8:30am · Report

Andrea Wilkinson This campaign is wonderful. We lost our second child, Elijah, umbilical cord accident in the 32nd week. We experienced a great spurt of activity followed by much reduced movement, then he was gone. The activity was so strong it made us laugh, had no idea it was a distress call and he was already in trouble :-( That was January 09. I am now 32 weeks pregnant and find huge ignorance in the nhs, at all levels..............even my consultant makes comments like he has never seen an uca death more than once in one woman..........I do not want to be the first!!

Love to all, such a loss we need to raise awareness
Andrea
Yesterday at 9:39am · Report

Andrews Mel Hi all, Well my daughter is now 1 mth old and due date yesterday. Thankfully she arrived safely (well after sometime in the special care unit and paed concerns.) Thank you Connie for your support, you gave me the courage to speak up and get some answers (after a very erratic CTG) the ob decided to schedule a caesarian and steroid shots. I am so glad you started this campaign and sorry that you had reason to have to. I have told all my friends and midwives and my ob about you. I am hoping some of them listen.

Take Care of yourself and I am so sorry to all the wonderful mummies who have lost their sweet little people.

Mel ox
4 hours ago · Report

Andrews Mel Hi AGAIN FORGOT TO ADD.
DURING MY LAST CTG, THE MIDWIFE SAID I WASN'T EXPERIENCING ENOUGH PAIN FOR THE READING ON THE CTG, SO SHE TURNED IT DOWN. PLEASE BE AWARE OF THIS TOO. IT COULD HAVE COST ME MY LITTLE PRINCESS, IF I HADN'T PERSISTED AND PURSUED THE MATTER. HUGS TO ALL.OX
9:31 am mst

Monday, April 5, 2010

Star Legacy Dinner
We are pleased to let you all know that this year we are adding a Friday night dinner (July 30th) to the golf benefit weekend!  This dinner will be held at the First Evangelical Lutheran Church in Longmont, CO and will feature Jason H. Collins, MD of The Pregnancy Institute in New Roads, LA.  The title of his presentation is "Stillborn but Still Born: Emerging Evidence in the Prevention of Stillbirth."  Details will be forthcoming but be sure to mark this date on your calendar now!
9:05 am mst

Wednesday, March 24, 2010

Star Legacy Cookbook - off to the printer!!
Wow!  What a job - but we are SO excited about the Star Legacy Cookbook!  We are so thrilled with the great response we've had to our requests for recipes!  There are well over 500 recipes in the cookbook thanks to all of you!

The cookbook has been sent off to the printer and we anticipate delivery in mid-May.  Please be sure to reserve your copy now so that you will get yours before they sell out!  At $20 each - that is less than 4 cents per recipe!!  Go to the Star Legacy Store and reserve your copy today!!!  What a great gift for  Mother's Day, birthdays, Christmas, or 'just because'!!

All proceeds from cookbook sales will go to stillbirth research and education projects!! 

Thank you from the bottom of our hearts!
9:39 am mst

Monday, January 25, 2010

Great things are happening!
Just a quick update.....

First of all, the cookbook is coming along nicely!  We are heading closer by the minute to our goal of 500 recipes!  If you haven't sent in a recipe yet - or want to send more, please feel free to do so! 

Second, the Star Legacy Foundation is hosting a meeting the first weekend in February in Baton Rouge, Louisiana with representatives of First Candle, Babies Remembered, Missing Grace Foundation, 1st Breath, Healthy BIRTH Day and The Pregnancy Institute.  The objective of this meeting is to discuss a collective strategy to increase awareness of umbilical cord and placental high risk factors and prenatal management of these high risk situations.  Stay tuned for more information!!

We are also hard at work on several grant applications - and we'll need your help before long!  Stay tuned - we'll be in touch!!

And, of course, the 5th Annual golf benefit planning is well underway.  This year it will be held on Saturday, July 31, 2010 at Thorncreek Golf Course in Thornton, Colorado.  We already know of folks coming from far and wide so it will no doubt be another great success.

New to the golf benefit weekend this year is a dinner on Friday evening prior to the benefit.  This dinner will be held at the First Evangelical Lutheran Church in Longmont, Coloado.  Dr. Jason Collins of the Pregnancy Institute will be the gues speaker for the evening.  Tickets to the dinner and golf benefit will be available shortly on the website. 

And finaly - did you know.......

Every day in the United States nearly 100 infants are stillborn - most causes are undetermined.  The Star Legacy Foundation for Stillbirth Research & Education considers this unacceptable.  Together we can make a difference!

 
12:57 pm mst

Friday, January 15, 2010

Star Legacy Foundation to produce cookbook.....
The Star Legacy Foundation is producing a cookbook "Food for Thought" to continue our mission of supporting stillbirth research and education.  We invite everyone to join us by submitting recipes and encouraging your friends and family to do the same.  The recipe submission deadline is January 31, 2010.  Recipes can be submitted in memory of a child if you wish.
4:35 pm mst

Saturday, November 7, 2009

Star Legacy Foundation joins the International Stillbirth Alliance

The Star Legacy Foundation is pleased to report that we have been accepted as a full member of the International Stillbirth Alliance.

ISA members comprise a diverse alliance of international organizations, ranging from parental groups and educational institutions to research groups. Members work together to support the goals of the organization.

We are honored to be found worthy of full membership in this organization and look forward to working in collaboration to end the needless tragedies so many families endure each year around the world.

Please visit the website for the International Stillbirth Alliance.

www.stillbirthalliance.org
7:58 pm mst

Thursday, October 1, 2009

4th Annual Golf Benefit is a Huge Success!
The 4th Annual Golfing For Garrett benefit was again a huge success!  We had a record number of golfers this year.  Next year our goal is to fill the golf tournament completely!  To date we have now contributed $26,000 to support the research of Dr. Jason Collins and the National Institute for Stillbirth Research.

We are presently investigating other ways our non-golfing friends and supporters can help support stillbirth research and education.  Stay tuned for details as plans are finalized.  We welcome your suggestions!
8:40 am mst

Monday, June 1, 2009

Dr. Jason Collins to attend 4th Annual Golfing for Garrett Tournament
We are extremely honored to learn from Jason Collins, MD that he will attend the 4th Annual Golfing for Garrett Charity golf tournament.    

Dr. Jason H. Collins, founder of The Pregnancy Institute, is the preeminent expert in the world on umbilical cord accidents. Based on his research he believes simple cord compressions account for a large portion of stillbirths said to be due to "indeterminable reasons".


Without the benefit of government grants or public funding, Dr. Collins, a practicing OB/GYN in New Roads, Louisiana, has spent his career studying the role played by umbilical cords in stillbirths. He has traveled, lectured, admonished and cajoled other members of the medical community, challenging them to put his research to the test.

6:25 pm mst

2010.04.01 | 2010.03.01 | 2010.01.01 | 2009.11.01 | 2009.10.01 | 2009.06.01

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